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People living with Long Covid in selected parts of the Lothian Health Board Area can now be referred by their GPs to the ground-breaking and innovative Digital Support Pathway for Long Covid.
With invaluable input from people living with Long Covid throughout, CHSS has worked with NHS Lothian and Pogo Digital Healthcare to design and develop the pathway, comprising the digital platform “MyTailoredTalks” and 12 weeks of regular advice delivered via phone calls by CHSS Advice Line health professionals.
A pilot was launched in 2022 and since then 350 people living with Long Covid have benefitted from this pathway with initial feedback being very positive. In December 2023 the pathway was opened up to GPs across the whole of the Lothians.
MyTailoredTalks recognises that Long Covid affects everyone differently and provides people living with Long Covid with information and advice about the specific issues they face, such as fatigue, low mood, brain fog or breathlessness in addition to advice on work and financial issues. All users need to do is to complete a simple self-assessment form, before being directed to information relevant to their symptoms and other issues.
People living with Long Covid are then able to request a call back from health professionals on the CHSS Advice Line, who as well as offering more support can refer them to further CHSS services such as local Peer Support Groups. Finally, information on what parts of the service the person living with Long Covid has used is fed back to their GP to help with their ongoing care.
Throughout the pilot, the views of users and professionals have been sought and acted upon to ensure MyTailoredTalks is easy to use, accessible and provides useful, up-to-date information.
Mike Smith, 58, from Edinburgh was referred to the pathway by his GP and has found the My Tailored Talks useful and easy to use. He has benefitted greatly from support from CHSS and the Long Covid peer support group.
Listen to Mike talk about the benefits of the Pathway, and ask your GP if this service is available to you.
This page was last updated on October 3, 2024 and is under regular review. If you feel anything is missing or incorrect, please contact [email protected] to provide feedback.